I just want to hear your voice.

When Jim died, I never expected to find him in my bed when I woke in the morning.  I did not experience denial, at least in the 'stages of grief' way I'd expected. I did not think he was coming home. When I woke up that first morning after the day he died, and indeed every morning ever since, I just knew he was gone, dead, at least in the physical world.  I knew it in my soul, in my heart, in my very cells.  

As life started to begin around me and our family and friends went back to their routines and jobs, I tried to regain my footing.  It was extremely difficult to leave the house. Every time I drove away, tears would fill my eyes. I felt I was driving away from the place we'd been closest, and the last place he'd really been alive. And every time I came home to only my dog, I'd cry at the emptiness of our, my, home. I would curl up on his spot on the couch, where he'd spent hours during his illness. I felt close to him there. I slept on his side of the bed, on his pillow.  

I tried to imagine him in the bed next to me, but it was no good. I knew he was never going to lie next to me again in this lifetime. So it came as some surprise to me when I first left for a night away and got to where I was going, that I checked my phone, expecting a text from Jim to be there on the screen. When I'm away from home and something makes me think of Jim, I want to text and tell him.  When I am home and walk by my phone on the kitchen counter, I always stop to check to see if he's sent me a text. I know this is impossible, yet I still continue to habitually check. What is it about the phone? In every other way I know he's gone, but I still expect him to call.

When I go away for the weekend with girlfriends and we arrive at our destination, they call or text to let their husbands know they've arrived safely. And I just stare at my blank screen, no one to text to tell him I'm okay. When I get in the car to head home, I grab my phone to text Jim that I'm on my way home, like I did almost every day for 17 years.  And I stare at my phone...what was I thinking?

In the first two years of our marriage, I was traveling 70-90% of the time. A few years later he was gone 2-3 nights a week for work.  It got much better when he decided to work for Slalom and he hoped to wind down his career over the following five years or so. But no matter who was away or for how long, or how far, we would check in with a call or text at least two or three times a day.  Perhaps that's what it is about the phone.  It was always our connection whenever we were physically apart. So at some level I may be hoping that we can connect again. And so I check my phone. And stare, unbelieving, but knowing.

I'd like to say that this has gotten better over time.  Maybe someday.  Until that time....

Second verse, not quite the same as the first, and a lot less worse.

Last year about this time I was coming up on what I called my season of firsts: September ... our wedding anniversary ...October ... my birthday...In November it would be hard to feel thankful when all I wanted to do was be with Jim  ...Christmas … I could not even imagine it...New Year’s...So hard to look ahead with so much left behind ...Finally February 19th would bring the first anniversary of Jim’s death. With the help of time, friends & family, a grief counselor and xanax (in no particular order), I got through it. Of course.  

Our last Christmas, Monterey 2013

As the anniversary of my husband's death neared, Kristina, my grief counselor, and I discussed my fears and my plans for getting through it.  While Jim and I were living through what would be his last month, everything was moving and changing so fast. But in retrospect I could remember and re-live again, and  again, the horrible details of that month. It was like some Kafka-esque slow motion replay of the anguish, suffering and roller coaster ride of the last month  of Jim's life. February 19th came and despite my expectations, of course I survived...What else could I do. Life wants to live. And so, that morning, as I  have every other, I told myself, "if you don't get up now, you never will". And do you know what?  I cannot fully explain it but something magical did happen, after that sad day passed, I did feel lighter! As if a load had lifted off my shoulders. I had lived in such dread of that day, and I survived!

I am still amazed that I have gotten through this past year, and am now in my Season of Seconds.  Our anniversary fell over Labor Day weekend and I knew I was just going to hibernate and be sad. But I also did a lot of meditating and reflecting. Much of my grief work has been focused on mindfulness.  And so, as I approach my birthday and Thanksgiving, it is my intent and my goal to be in the present, to be grateful for the moment I am in now. I have also given myself permission to fully immerse myself in grief, if need be, on days that are specific to Jim - his birthday, our anniversary, and the day of his death. Those are days when being present means being present with my grief, my loss, my loneliness. But days like my birthday, Thanksgiving and Christmas are all intended to be celebrations filled with happy memories, laughter and love. I know it won’t be easy, but with intention and attention, I have a better chance or not just surviving these milestones, but thriving.

The Car

Anyone who knows me know I am a +Honda girl. Ever since my parents handed down their 1977 Honda wagon to me, I have been a fan. My husband, Jim, knew this when he married me. So many years later when my 50th birthday was creeping up, he decided I needed my dream car, a Honda convertible, and that meant an S2000. But of course, being Jim, he did his research and discovered a special model, the S2000CR, and he determined it was exactly what we needed.

Two things worried me about this. First, CR stands for Club Racer and as Car and Driver stated, “this is a track-day toy.” I am not a race car driver. I don’t want to be. Second, the CR is not an automatic convertible, meaning it has a removable hard top. This was never an easy task for the two of us and usually the removal or replacement of the top led to hurt feelings is not an argument. It quickly became apparent that it was his almost 50 present, not mine. But it made him so happy, I really didn’t mind.

He even went to great lengths to make the car a more comfortable ride for me by changing the suspension to make it less bouncy and adding sound dampening. When he started commuting into the city, he didn’t want to put in the miles so the S, as we’d begun to call it (also known as his baby) became my daily commute car. Every day when I returned home from work he would circle around it checking to see what new damage may have been inflicted. Usually there was none. Finally I’d had enough and we got a third car for commuting and the S was for weekends.

We took some great trips with wonderful memories made in that car; through redwoods, to the beach, to Yosemite. It really was fun and the S grew on me over the years. When Jim was diagnosed with cancer he vowed to drive the S to every doctor appointment and treatment for as long as he could. The staff loved seeing him tool up in his sporty little roadster wearing his Cancer Sucks t-shirt. We tried to attend a CR meet in LA while he was in the midst of radiation treatments. He didn’t want to be taking morphine while driving and the withdrawals made him so sick that we had to go home the morning after we arrived. He was so disappointed.

Car washing at CR Meet

As his illness progressed, bills added up and disability payments were delayed. Jim decided he need to sell the car to make sure we had enough money. I begged him not to. Yes, we had enough money, but more importantly it would have broken my heart to watch him watch that car drive away. Fortunately the disability check came through about a month before he died, so the car was never sold. It brought him such joy to work on, drive and just look at that car. He never had to say goodbye to it. I am so grateful for the happiness that car brought him.

A few months after Jim died, I contacted a friend we’d made through the +S2000 Club of America CR community. Although I was looking for advice on selling the car, he convinced me to not make any quick decisions and helped me understand what I needed to do to keep and take care of the car. First and foremost, I knew if I was going to drive it at all it had to be topless. But in order for that to happen, I needed to take off the roof, not an easy task. In order for that to happen, I needed to build or buy a rack to store to the roof on once it was removed. Once I built the rack out of PVC (taDa), I needed a place to put it, so I cleaned out the shed, making room for the rack and roof. But before that could happen, I needed to be able to park the now topless car in the garage. And in order for that to happen, I needed to clean out the garage. As I silently shook my fist at Jim for the number of saws (or whatever tool) he had, I realized, if the tables were turned and he was cleaning out my ‘cave’, he’d be cursing me out for the number of pairs of shoes I owned. So I sent a silent prayer up thanking him for always making sure we had the right tool for the job. Once there was space, I realized I needed to remove a workbench he had built. Every step led to another, like the house that Jack Built, and this one brought tears as I had to physically break down something he had built. 

Finally I was able to remove and store the hood and park the car in the garage. In the winter I have it on a battery tender and in the summer I still drive it on weekends and short road trips. This weekend, I am making a pilgrimage of sorts, to honor Jim. S2000 drivers from around the world are gathering at #S2KHomecoming to celebrate all things S2000.I will be taking a road trip, this time without him physically there, but always a part of me, and always a part of his baby. It will be bittersweet for me to be there, knowing how happy it would have made him to be a part of such an event. But I know with all my heart he will be the angel smiling at my side the entire time.

It just doesn't matter

Two years later, and it still bugs me, "Did he smoke?" As if his smoking makes cancer so much more justified. I even get the, 'oh now it makes sense' look when people hear my 53 year old husband died of cancer, as that explains why someone so young would die. There is no way to make sense of it, no explanation that makes it okay.  

Do you ask a type-II diabetic , 'why do did you eat so much sugar? Do you ask an overweight person, Did you know your weight could cause heart attacks? '  Do you ask someone with brain tumors, oh did you think too much? Are we really blaming people for getting cancer? Why are they asking? Why does it matter?  My response is, "Yes, he did, but it doesn't make this any easier."  I suppose it is our search for meaning - our desire to explain the unthinkable - to be sure, well, it couldn't happen to me, because I don't ____ (insert vice here).

Do I wish he would have not smoked? yes. Might it have made a difference? yes. Do I hope our loved ones who smoke will quit? Absolutely!

Please understand, whether he smoked or not does not make his death from lung cancer any more bearable. I always knew cancer, and a premature death, were a possibility, always. But it does not make it one bit easier. Not one bit easier. Not. One. Bit.

When someone who is not a health practitioner asks, did you smoke? were you in the sun a lot? did you eat too much fat? There is no action, nothing constructive that can come out of the answer. Charlotte Huff writes in Slate, 

Judgments about behavior not only unsettle and stigmatize the patient, but reflect the interrogator’s own insecurities. Frequently, those disease detectives are attempting to regain a sense of control amid the inherently random and sometimes unjust world that we all reside in, according to researchers who have studied stigma. Psychologists refer to this as the “just-world hypothesis,” a bias in thinking and perception that was first described by psychologist Melvin Lerner and colleagues more than four decades ago ...

“I think that in one part there is a fundamental assumption in our society that the world is a just place, and that bad things don’t happen to good people,” says Gerald Devins, a stigma researcher and senior scientist at the Ontario Cancer Institute in Toronto. “And I think when bad things happen to good people, it’s threatening to everybody.”

“Secondly, you can say knowledge is power in a sense,” Devins says. “If we feel like we understand something, it gives us the illusion of control.”

So instead of asking what caused his death, ask how you can help. Ask if you can cry with me. Ask me to go to a nice dinner with you. Ask if there is anything I need. Don't ask how he got cancer. It just doesn't matter.

Fake it 'til you make it

"It's so good to see you thriving," exclaimed one of my friends, seeing pictures of a recent trip to Yosemite. If she only knew.

If she only knew the trip was an homage to Jim, a retracing of a drive we made in 2011, one of our happiest days ever. It was his birthday and we drove with a group of S2000 drivers to Yosemite, had lunch and drove home. We laughed, talked and just enjoyed each other's company surrounded by the beauty of nature. I wanted to re-drive that route, to feel a connection to that happy time.

If she only knew a reason for the trip was to leave a little bit of Jim behind. As I looked hopelessly for signs of water in the drought stricken Mirror Lake, I was left to my own reflections... remembering the happy time when we had traveled to Yosemite with my parents and we sneaked away for a little quiet time to that very same spot, loving each other on a granite boulder beneath the towering trees. Now I was retracing that hike, to find no beautiful lake, but a spot as dry as my heart felt. I left a little of Jim at the base of the boulder, and my tears fell. Tears of abject loss mixed with the joy of remembering the love we shared that day.

If she only knew I booked a room at The Ahwahnee lodge because I'd always wanted to stay there with Jim and never got the chance. As I sat on the balcony gazing up at the massive granite wall, I cried at the overwhelming sense of loss that we would never ever share this experience together.

If she only knew how incredibly hard it is for me to even leave the house, and how much harder it is to come home to an empty home. I drive away and feel like I am leaving a part of him behind. I come home to the quiet and long to hear his hearty laugh and a warm, welcoming hug. I curl up on the couch where he used to sit and watch his favorite movies and shows, over and over. I alternate between wanting to clean house and move to wanting to preserve every note he wrote, every object he touched. This does not feel like thriving.

If she only knew that I still cry. I yearn for my husband's arms around me. Some days I hardly feel like I am thriving, I feel like I am barely surviving. I get up and go through the motions. I know I need to eat, so I eat. I know I need human interaction, so I leave the house. And with time, I am able to find joy in these activities, yet there are moments when I still feel an aching emptiness so strong it feels like a punch to the gut.

I know this too shall pass. Just like there are moments where I can't even breathe, I also find the joy in gratitude. Just this morning as I was thinking about our upcoming wedding anniversary I realized, with a full heart, that I would not give up the life we had for anything. The cost of losing him was high, but the love we created lives on.

Paulo Coelho, is a Brazilian lyricist and novelist writes, “You must be the person you have never had the courage to be. Gradually, you will discover that you are that person, but until you can see this clearly, you must pretend and invent.”

Or as I would word it less eloquently, 'fake it 'til you make it.' Wikipedia explains "Fake it 'til you make it" (also called "act as if") as a common catchphrase.

The purpose is to avoid getting caught in a self-fulfilling prophecy related to one's fear of not being confident, ...It is often recommended as a therapy technique for combating depression. In this case, the idea is to go through the routines of life as if one were enjoying them, despite the fact that initially it feels forced, and continue doing this until the happiness becomes real.

There are days I do feel strong, moments of clarity when I can focus on the love we shared and be grateful for the person I have become. But there are also days when I crawl into a little ball and cry and wail for the the death of my husband like it was yesterday. If she only knew.

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