The Reason We're Here

So here is what I have been contemplating: when I look back on my life, for the most part, it's been pretty sweet.  And I can honestly say that all of the big, bad things led me to Jim...so that is good.  My miscarriage led me to New York, which was good then bad, but from that bad, I became friends with Jim and then lovers. So, is it possible that from this horribly sad thing, the death of my husband, that something better will come? Or just different?

Even though I have moments where I think this might be possible, later I cry just changing the sheets and can't imagine how anything good or better would ever possibly come from this. I don't want to imagine anything better than the love I feel for Jim.

I am at a time when I can redefine, refine, reframe the story of my life.  Who do I want to be? I want to be loving, caring, generous, adventurous and indominatable, if that is even a word.  Right now I don't feel any of those things

I was raised in a church-going family, twice on Sundays, Wednesday night Bible study and Thursday night choir practice.  There were pleasantly blurred lines between family and congregation. I was raised American Baptist, which I later learned is quite different from Conservative or Southern Baptist.  My parents were (and are) loving, welcoming, compassionate and have a daily relationship with God. When I was old enough to think for myself, I accepted Christ as my personal Lord and Savior. Over the years I learned that for me, organized religion was not my path, however I have a deep and abiding faith and spirituality. 

Years ago I sat at the bedside of a friend in his final days. We talked late into the night about why each of us are here. Kurt believed that God asked special angels to come back to Earth and live with HIV to teach us all compassion. In the middle of the night, as Kurt slept, I must've dozed off because I woke with a start with one thought in my head, Romans 13:9.

As soon as I got home, I looked up the passage in my Bible. 

The commandments, “You shall not commit adultery,” “You shall not murder,” “You shall not steal,” “You shall not covet,” and whatever other command there may be, are summed up in this one command: “Love your neighbor as yourself.” 

That was it, the answer to what is my purpose, to why are we here, to how do I respond to life's curves: the answer is love. I believe that we are put here on Earth for a purpose, and that purpose is simply to love each other. As Chrissie Hynde sang, "now the reason we're here, is to love each other, take care of each other, is to help each other, stand by each other."

Throughout our journey, I have never doubted the presence of a higher power. I have never asked, Where is God? Why me? I believe that God is here and God is everywhere. I do not believe God gave Jim cancer, anymore than God caused a 13 year-old girl to come out of tonsil surgery as brain-dead or God caused a mentally ill man to shoot up a school.  I do believe that everything we have been through in our lives prepares us for everything to come. Thich Nhat Hahn says, in Living Buddha, Living Christ, "To breathe and to know you are alive is wonderful. Because you are alive, everything is possible... Please don't waste a single moment. Every moment is an opportunity to breathe life into the Buddha, the Dharma, the Sangha (the community). Every moment  is an opportunity to manifest the Father, the Son and the Holy Spirit."

"We think the point is to pass the test or to overcome the problem, but the truth is that things don't really get solved. They come together and they fall apart. Then they come together again and fall apart again. It's just like that. The healing comes from letting there be room for all of this to happen: room for grief, room for relief, for misery, for joy."

- Pema Chodron

"What we can do that takes best care of us is to trust Life completely. Our part is to 

stay right here, with the breath, paying close attention and moving in the direction 

Life guides us. In that way, we can learn all there is where we are and be ready to 

be somewhere else when that learning is complete."

- Cheri Huber

I am still learning.

Something yet left to do.

Many years ago, just before my grandfather turned 90 he asked me, "Why am I not dead yet?" I told him 'clearly he had something left to do.'

After my husband died, I wondered the same thing.

At first it seemed inconceivable that I could survive the wrenching hurt that permeated my being. How could anyone? Yet I knew people that had, and did.  But I am not them. I could not imagine living another day without Jim. I suppose like anyone, I'd hoped we would grow old together and die in our sleep on the same night. I knew that wasn't likely. I knew by our family histories that the likelihood was that I would outlive him, yet I never really grasped what that would mean. I could never have imagined the emptiness, the profound sadness, the complete and utter hopelessness of my grief.  So how, when that grief was upon me, could I possibly live through it?

I really did want to be dead. I never wanted to end my life, I just simply did not want to be alive. Why was I not dead? I did not feel life, nor did I want to feel alive. In those first months my numbness probably served as a protective shield from the reality of my life ahead. But in the grey fog of those days, I just wandered, and wondered, 'why am I not dead yet?'  Heaven or not, I wanted this life to be over. If heaven is real, then I knew I'd be reunited with Jim. If the after-life is something where we just exist on another plane, I assumed I'd be on that plane with him. If we are reincarnated, then the sooner I died, the sooner I could start a new life with Jim in another time. And if there is no heaven, no after, then I would be together with him in the black nothing...and at least this pain would end.

I was pretty sure no one wanted to hear about it, and so I never spoke if it. I didn't want friends and family worrying about me any more than they already were. But in my heart there was darkness.

Later, as the searing pain subsided, to be replaced with more of a dull, ever present ache, I didn't want to be dead as much as I just didn't care. I ate because I knew I should, I tried to be social when I felt up to it, I returned to work. I slept. I slept a lot. I wasn't depressed, I have been depressed and this was something different. I was just sad. The life I'd loved, and come to depend on, was gone...over.  I continued to try to bravely put one foot in front of the other. I was in my 'fake it til you make it' phase. I finally did talk to my grief therapist about my feelings, and she assured me they were quite normal. She knew I wasn't suicidal, and so we talked about the sadness and emptiness.

But I still wondered, why am I not dead?  I had reasons to live...I love my family - of choice and of birth. I enjoy my career, although I found facing expectant 10 year olds day after day to be exhausting in those grieving days. I also knew that if Jim would here he'd metaphorically kick me in the ass and say, "why are you wasting your time? I'd give anything to have one more day to enjoy this thing called life! Get out there and LIVE!" We worked hard to save for our future and it has occurred to me that the future we'd dreamed of is now mine, and it is now!

I talk about it now because I think it is important to face up to the whole range of experiences that I had and continue to go through. I also hope that by my naming it, others who are or will go through a profound loss will see that perhaps these feelings are a normal part of grieving. Marc Brackett, of the Yale Center for Emotional Intelligence, says, “Labeling your emotions is key. If you can name it, you can tame it.” And Daniel J. Siegel, neuropsychiatrist and co-author Tina Payne Bryson write in their book, The Whole Brain Child:

“When (people) learn to pay attention to and share their own stories, they can respond in healthy ways to everything from a scraped elbow to a major loss or trauma. ...to put things in order and to name these big scary right-brain feelings so they can deal with them effectively…When we give words to our frightening painful experiences—when we literally come to terms with them—they often become much less frightening and painful.”

I no longer wonder why I am not dead. Clearly, I have something left to do. I know I have a lot of life yet to live and strive to live every day to its fullest, no matter how many days I have left. There are some days where all that means is that I just get up and get dressed, Other days, living life to its fullest involves an amazing adventure. And both are okay, it is all part of this journey I am on. My journey out of the valley.

Second verse, not quite the same as the first, and a lot less worse.

Last year about this time I was coming up on what I called my season of firsts: September ... our wedding anniversary ...October ... my birthday...In November it would be hard to feel thankful when all I wanted to do was be with Jim  ...Christmas … I could not even imagine it...New Year’s...So hard to look ahead with so much left behind ...Finally February 19th would bring the first anniversary of Jim’s death. With the help of time, friends & family, a grief counselor and xanax (in no particular order), I got through it. Of course.  

Our last Christmas, Monterey 2013

As the anniversary of my husband's death neared, Kristina, my grief counselor, and I discussed my fears and my plans for getting through it.  While Jim and I were living through what would be his last month, everything was moving and changing so fast. But in retrospect I could remember and re-live again, and  again, the horrible details of that month. It was like some Kafka-esque slow motion replay of the anguish, suffering and roller coaster ride of the last month  of Jim's life. February 19th came and despite my expectations, of course I survived...What else could I do. Life wants to live. And so, that morning, as I  have every other, I told myself, "if you don't get up now, you never will". And do you know what?  I cannot fully explain it but something magical did happen, after that sad day passed, I did feel lighter! As if a load had lifted off my shoulders. I had lived in such dread of that day, and I survived!

I am still amazed that I have gotten through this past year, and am now in my Season of Seconds.  Our anniversary fell over Labor Day weekend and I knew I was just going to hibernate and be sad. But I also did a lot of meditating and reflecting. Much of my grief work has been focused on mindfulness.  And so, as I approach my birthday and Thanksgiving, it is my intent and my goal to be in the present, to be grateful for the moment I am in now. I have also given myself permission to fully immerse myself in grief, if need be, on days that are specific to Jim - his birthday, our anniversary, and the day of his death. Those are days when being present means being present with my grief, my loss, my loneliness. But days like my birthday, Thanksgiving and Christmas are all intended to be celebrations filled with happy memories, laughter and love. I know it won’t be easy, but with intention and attention, I have a better chance or not just surviving these milestones, but thriving.

We are all on a Journey

In those early months after Jim died, as I did what I call the zombie walk, I wondered how the world could keep turning, how people could continue to go on with their mundane activities. I could scarcely breathe!  Later I realized, people all around us are each on their own journey out of their own valley. We each just have to keep getting up. We are all suffering and so, for me, I have learned to be more forgiving, more accepting. Because of my grief, I am able to feel deeper and have more compassion for all souls. 

Along the way, I may recognize a fellow traveler, still on their way out of the valley. I’m not out of my valley yet, and I may never be. In this second year, I am simply sad. Sometimes I stumble or double back.That blanket of grief is still available to me, but like a child starting their first day of school, I can leave it at home (or stash it in my backpack), secure it the knowledge it is there for me when I need it. Though I did not think it possible, I have moved forward and upward. My load is made lighter by the things I can let go of, by the support I get along the way, and the days are getting brighter. But my journey continues. I wake up every morning, I still have to decide to get up and go on. With the help of my family, friends and my grief support team, I know I am not alone on my journey.

In the fall of 2014, a little over six months after Jim's death, a friend of mine had arranged tickets for us to see Oprah. I was reluctant to go at that time in my life, but decided to embrace the opportunity. We were challenged to write about our own vision of “The Life You Want”.… 

This vision continues to be my goal.  … here's part of my vision statement: My life is filled with joy and I am at peace. I feel and share the love of my family, both my family of choice and my family of birth..... I am mindful and aware... My life has meaning. My grief and loss have made me a stronger, deeper, more compassionate person. My fear is done. I have no anger. I am present. My heart is open and I am connected to the world.  I trust. I matter.  I am truly blessed.  I choose gratitude. I choose happiness. I choose life.


And so, here I am, a short 27 months after my husband was diagnosed with stage IV lung cancer. I am able to share our story and live my life in a way I never dreamed possible. May you, too, choose gratitude, choose happiness, choose life.