Make it Matter

Today is the three year anniversary of my husband's death. So obviously I have been thinking a lot about Jim, his life, his death. When it was clear Jim was not going to live and the ventilator had stopped breathing for him, we gathered around his bed, holding him up in our hearts.  We cried and talked to him, I held his hand in mine and we all held each other. My brother was on the phone with us from Pittsburg and prayed for Jim with us. I whispered my promise, my love, my life into his ear. Jim was always a scrappy fighter and he held on for about an hour. At one point, I noticed the nurse glancing at her watch. I know she was just doing her job, but it really bothered me. Was she in a rush? Did she have somewhere to go? What in the whole world could be more important that this exact moment?

I don't why that watch, that surreptitious glance, bothered me so much and have thought about it often.  Just the other day I realized ever since that day, I have been looking at my watch.  I know I have chosen life but I have not really chosen to go on living. I've just been going through the motions, waiting for time to run out.  I have been living like I was dying, but not in the Tim McGraw sense of going skydiving and Rocky Mountain climbing. No, more like my dog staring out the window waiting for me to come home. I am waiting for the time when I am in one way or another reunited with the love of my life.

I don't want to wait anymore. I want to live. I know, because we talked about it, Jim wanted me to go on living, and living life to it's fullest. But I don't know how. My heart still aches for him. For us. For who I was when I was with him. Three years ago a part of me died with Jim.

Perhaps because I am reading Murakami, or because of the date, but I dreamt an intriguing  dream last night. Like many of my dreams, it was long, drawn out, and convoluted.  I was living is some sort of idyllic summer camp community. There was a fire or invasion or something devastating. Those of us that escaped joined a new community. But this one had very defined groups without the love, inclusion, and acceptance of our previous home.

After walking for what seemed forever, visiting each group but never becoming part of it, I came across a sparse museum of artifacts from our old community. A man there I knew handed me a folded up piece of paper with a knowing, loving look in his eye. I could tell by the deep creases in the paper that it had been folded for a long time. As I unfolded it, I immediately  recognized the handwriting. I don't remember all it said, but it ended with these words, Make it Matter.

Murakami writes, In dreams begins responsibility. I have been given this life. I've written before about my responsibility to live life to it's fullest, for me and Jim. To live big enough for both of us. It is time for me to do just that. To stop looking at my watch. Time to stop living like I am dying, but live like I am living!  The time is now to live life and make it matter!

Moments

http://www.goluputtar.com/best/life-quotes/

About 20 years ago this month there was a moment when I sat across from the conference table and was introduced to a new colleague named Jim McConnell. What I didn't realize at the time was that we had actually spoken on the phone about a year before. Back then he was an irate customer and my impression of him then was that he was arrogant and annoying. As we started working together, we realized we had a lot in common. We had both relocated to the East Coast from far away for reasons that were similar. And we forged a friendship out of that common bond. Jim's client base was in New York where I was located . One night a group of us were planning to go to a movie and everybody canceled except for Jim. I really didn't want to go to a movie with just this one guy so I agreed to meet for a drink. I figured we'd grab a drink next-door to my office at Bryant Park and then I would quickly get on my train, making my excuses. Funny how life has other plans. That quick drink after work became dinner, dinner became kind of a date. That moment after work turned into a very special evening. He called on Friday to see if he could drive down from Boston and I met his son Bobby and the three of us connected really quickly. We had a  fun weekend in the beautiful Hudson Valley. But at the end of the weekend, I informed him that I was not interested in dating someone from work. Less than 48 hours later he showed up at the office and gave his two  week notice. Jim said "OK I don't work here anymore we can date," so we did.

Six months later I got an offer to move back to California. It was a great job offer that I couldn't refuse so I didn't. I moved and three months after that Jim announced that his boss agreed to transfer Jim to California. He proposed to me at Christmas. Ten months later we were married on a beautiful day at the beach, surrounded by close family and friends, while dolphins played in the surf. I still can't believe how quickly everything progressed.

Seventeen short years later Jim was diagnosed with cancer. And two years ago  he died. What I never realized then, but do now is that what seemed to be seemingly insignificant moments became huge moments that would change my life forever and indeed define me.

I wouldn't have changed one of those moments to give up the others. I'm blessed to have the moments that created our life together and the memories of our love. I'm also blessed by the friends and family that have stood with me and held me up during these extremely difficult last three years.

I have learned be mindful of each moment. To embrace the joy of now.The little things really do become the big things. And you just never know.

http://quotes.viralcreek.com/moments-take-breath-away/

What, me worry?

I come by my worrying honestly. My mom is a worrier and I am too. But I am working on it. One
of my favorite walking mantras is,

Why worry if there's nothing I can do?

If there's something I can do, why worry?

Worrying...regret over the past or anxiety about the future, only takes us out of the now. And now is all there is.

For most of my life, I'd say almost 50 years, my biggest worry, also a gift from my mother, is 'what would people think?' I'm embarrassed to admit it has been a driving force in many of my (good and bad) decisions. The truth, I know now, is that most people don't notice or care what I do, and even if they do, it doesn't matter, as long as I am true to myself and not intentionally hurting anyone.

Why the switch? I guess I'd have to say it was a gift from grief. When Jim was dying, I really could care less who saw or heard me cry. At one point I was in the hallway outside Jim's hospital room, alone and crouched in a little ball, crying my eyes out. A nurse came up to me and offered the privacy of an empty room. I declined. I wanted to stay close and I was oblivious to how my sobbing might be affecting the other patients in the middle of that darkest night.

That night it was like a switch went off. I really didn't worry about what anyone thought about me. If I wanted to cry, I cried. And I cried a lot. In the middle of the shampoo aisle, in restaurants, in the faculty room. Who was going to judge me? I was a grieving widow!

Blogger Grant Leishman wrote a great post on the silent killer, Worry. He cites the work of self-help 'guru' Andy Shaw.  Leishman writes:

Why do we worry about what others think? You have to ask yourself a simple question. How can what someone thinks about me help me in reaching my goals and dreams in life?
If you are looking for acceptance from your father, mother, partner, friends, or acquaintances, why are you doing it? Just love yourself; don’t ‘try’ to make others give you what you think you want. They can only give you what you allow them to and they can only take from you that which you allow them; others have no power over you unless you give it to them.
If you love yourself, you don't need to seek acceptance, validation or love from others. You can't control other people's thoughts, so don't try - just be the person you need to be...

It has been extremely liberating to stop worrying so much about well - everything! I worry less about what people think. I make choices that are the best for me in this moment. I worry less about the future. There are no guarantees, so I try to make every moment count.  I don't worry about my health or even death. I try to make healthy choices and when my time comes, it comes. I strive for peace, consciousness, mindfulness, gratitude, grace and bliss, for myself and the world.  Worry changes nothing and only takes me out of now.

And now is all there is.

Stages, phases, tasks, storms and waves

In the 70's as a sociology major, I studied the research of Dr. Elisabeth Kubler-Ross who had worked with people receiving news of their own impending death. She determined they went through stages, which, she wrote, often overlap, occur together and some reactions are missed altogether. The stages included shock, denial, anger, bargaining, depression, and finally acceptance.

Later people mis-attributed this stage theory to any loss such as the loss of a parent or spouse, even the loss of a job or the end of vacation (I think far past the point  where the extension has jumped the shark). In his introduction to the re-release of Kubler-Ross', On Death and Dying,  Dr. Alan Kellehar writes, that it is only by overlooking this principle aim of Dr. Kübler-Ross’s book – that of the privileging the voice of the dying – that a whole industry of mythmaking has resulted. On Death and Dying was never a study of bereavement.  It was research and observation of individuals' reactions to the experience of dying Yes, those people grieve, but it is not the same as the grief of those of us who survive the loss of a loved one, and our experiences may not, and likely will not, match those she found in her studies.

Other researchers said no, its not just a series of steps the griever goes through, it's more of a curve.I don't agree with this picture.  I think it is far less linear than stages imply. The curve implies once you are done with shock, you move to numbness, then denial, then later depression, finding hope and finally loss adjustment.

  To me it's more of a squiggly line. I may move from loneliness to depression, then back to numbness and jump over to helping others, and so on again and again.

Others have shown a spiral, where your life entered a kind of tornado, and your new life comes out the other side. I've felt like grief comes in waves. Sometimes a tsunami like surge, other times just a gentle lapping at my ankles. But just like the ocean, you should never turn your back on it.

If you Google "stages of grief" you get over 23 million results. The number of stages range anywhere from 5-20

We all grieve in different ways and there is no one right way. Dr. Alan Wolfelt is an author, educator and grief counselor. His model includes needs, tasks that need to be addressed before reconciling with our new reality can happen. They don't happen in order, and you may need to come back to them again and again. He writes of the mourner's six 'reconciliation needs' which include:

1. The need to acknowledge the reality of the death 
2. The need to embrace the pain of the loss
3. The need to remember the person who died
4. The need to develop a new self identity
5. The need to search or meaning
6. The need for ongoing support from others

This model, for now, make sense to me. 

• Acknowledging the reality - In the beginning, my mind would play and replay the events leading to Jim's death. I was pretty sure I had 'acknowledging the reality' down. I never ever thought that Jim was not dead. I knew at a cellular level he was gone. In the groggy, floaty space of morning I never thought he was next to me. Yet, I sometimes had to remind myself, 'it is always going to be like this, he is never coming home.' And I still look at my phone to see if there is a message.
• Embracing the pain - Although I was raised in a family that did its best not to express emotion, I have been pretty effective in breaking that mold. In fact, even as I child I was teased for being the sensitive one. I discovered it is not a weakness to be sensitive and I am glad I can show my feelings. When I am sad, I cry, I give myself to loss, just as I gave myself to love.
• Remembering - Photos, mementos, even the Car, give testimony to a different form of a continued relationship with my husband. I cherish memories of our life together. Some people may try to avoid talking about him, or want me to put away things that remind me of Jim. They are afraid to bring up his name or his death for fear it will make me sad. As if I am not already. I remember many years ago I was out of the country when a childhood friend died in a motorcycle accident. I was afraid to mention it to his mother when I got back. Silly me, as if she could ever NOT think about it, not remember. When I did share my condolences, my shared memories were a comfort to her. 
• A new self identity - You confront your changed identity every time you do something that used to be done by the person who died. This can be very hard work and can leave you feeling very drained. This is the need that I struggle with the most. I still, in my heart, for now, feel that Jim is my husband and I am still married. I've read several books on grieving but it took me months before I could read one called Widow to Widow. I was not ready to call myself a widow. I am still married, just married to a dead man. Later, I could check the box for widow but when the form only had two choices I was so mad. It was a government form, so I couldn't say married, yet I certainly wasn't single. Who am I going to be? Yeah, this need is not met yet. This task is 'in progress' as they say.
• Search for Meaning - It is natural, when someone dies, to question the meaning of life...why are we here? why did this happen? what is the point? For me this is a life long task, one not necessarily linked to my grief. But really, when I am mindful, I think it is pretty simple.  We are here to love our selves and to love each other. To be happy and to help others be happy.

• Need for Ongoing Support - I am so very fortunate in this area. Despite my childhood's attempts to squelch all talk, or acknowledgement of anything emotional, my support system is amazing. Wolfelt says To be truly helpful, the people in your support system must appreciate the impact this death has had on you. They must understand that in order to heal, you must be allowed—even encouraged—to mourn long after the death. And they must encourage you to see mourning not as an enemy to be vanquished but as a necessity to be experienced as a result of having loved. I am blessed to have love and support from near and far.

Wolfelt tells us what I know to be true, you never 'get over' grief. You don't recover. The intense pangs of grief have subsided, but occasionally sneak up on me still. I will forever hold in my heart my memories of Jim, and I am able to make plans for the future. My journey will never end.  But I do believe, in time, we do (and I will) reconcile with my grief.

Something yet left to do.

Many years ago, just before my grandfather turned 90 he asked me, "Why am I not dead yet?" I told him 'clearly he had something left to do.'

After my husband died, I wondered the same thing.

At first it seemed inconceivable that I could survive the wrenching hurt that permeated my being. How could anyone? Yet I knew people that had, and did.  But I am not them. I could not imagine living another day without Jim. I suppose like anyone, I'd hoped we would grow old together and die in our sleep on the same night. I knew that wasn't likely. I knew by our family histories that the likelihood was that I would outlive him, yet I never really grasped what that would mean. I could never have imagined the emptiness, the profound sadness, the complete and utter hopelessness of my grief.  So how, when that grief was upon me, could I possibly live through it?

I really did want to be dead. I never wanted to end my life, I just simply did not want to be alive. Why was I not dead? I did not feel life, nor did I want to feel alive. In those first months my numbness probably served as a protective shield from the reality of my life ahead. But in the grey fog of those days, I just wandered, and wondered, 'why am I not dead yet?'  Heaven or not, I wanted this life to be over. If heaven is real, then I knew I'd be reunited with Jim. If the after-life is something where we just exist on another plane, I assumed I'd be on that plane with him. If we are reincarnated, then the sooner I died, the sooner I could start a new life with Jim in another time. And if there is no heaven, no after, then I would be together with him in the black nothing...and at least this pain would end.

I was pretty sure no one wanted to hear about it, and so I never spoke if it. I didn't want friends and family worrying about me any more than they already were. But in my heart there was darkness.

Later, as the searing pain subsided, to be replaced with more of a dull, ever present ache, I didn't want to be dead as much as I just didn't care. I ate because I knew I should, I tried to be social when I felt up to it, I returned to work. I slept. I slept a lot. I wasn't depressed, I have been depressed and this was something different. I was just sad. The life I'd loved, and come to depend on, was gone...over.  I continued to try to bravely put one foot in front of the other. I was in my 'fake it til you make it' phase. I finally did talk to my grief therapist about my feelings, and she assured me they were quite normal. She knew I wasn't suicidal, and so we talked about the sadness and emptiness.

But I still wondered, why am I not dead?  I had reasons to live...I love my family - of choice and of birth. I enjoy my career, although I found facing expectant 10 year olds day after day to be exhausting in those grieving days. I also knew that if Jim would here he'd metaphorically kick me in the ass and say, "why are you wasting your time? I'd give anything to have one more day to enjoy this thing called life! Get out there and LIVE!" We worked hard to save for our future and it has occurred to me that the future we'd dreamed of is now mine, and it is now!

I talk about it now because I think it is important to face up to the whole range of experiences that I had and continue to go through. I also hope that by my naming it, others who are or will go through a profound loss will see that perhaps these feelings are a normal part of grieving. Marc Brackett, of the Yale Center for Emotional Intelligence, says, “Labeling your emotions is key. If you can name it, you can tame it.” And Daniel J. Siegel, neuropsychiatrist and co-author Tina Payne Bryson write in their book, The Whole Brain Child:

“When (people) learn to pay attention to and share their own stories, they can respond in healthy ways to everything from a scraped elbow to a major loss or trauma. ...to put things in order and to name these big scary right-brain feelings so they can deal with them effectively…When we give words to our frightening painful experiences—when we literally come to terms with them—they often become much less frightening and painful.”

I no longer wonder why I am not dead. Clearly, I have something left to do. I know I have a lot of life yet to live and strive to live every day to its fullest, no matter how many days I have left. There are some days where all that means is that I just get up and get dressed, Other days, living life to its fullest involves an amazing adventure. And both are okay, it is all part of this journey I am on. My journey out of the valley.

I just want to hear your voice.

When Jim died, I never expected to find him in my bed when I woke in the morning.  I did not experience denial, at least in the 'stages of grief' way I'd expected. I did not think he was coming home. When I woke up that first morning after the day he died, and indeed every morning ever since, I just knew he was gone, dead, at least in the physical world.  I knew it in my soul, in my heart, in my very cells.  

As life started to begin around me and our family and friends went back to their routines and jobs, I tried to regain my footing.  It was extremely difficult to leave the house. Every time I drove away, tears would fill my eyes. I felt I was driving away from the place we'd been closest, and the last place he'd really been alive. And every time I came home to only my dog, I'd cry at the emptiness of our, my, home. I would curl up on his spot on the couch, where he'd spent hours during his illness. I felt close to him there. I slept on his side of the bed, on his pillow.  

I tried to imagine him in the bed next to me, but it was no good. I knew he was never going to lie next to me again in this lifetime. So it came as some surprise to me when I first left for a night away and got to where I was going, that I checked my phone, expecting a text from Jim to be there on the screen. When I'm away from home and something makes me think of Jim, I want to text and tell him.  When I am home and walk by my phone on the kitchen counter, I always stop to check to see if he's sent me a text. I know this is impossible, yet I still continue to habitually check. What is it about the phone? In every other way I know he's gone, but I still expect him to call.

When I go away for the weekend with girlfriends and we arrive at our destination, they call or text to let their husbands know they've arrived safely. And I just stare at my blank screen, no one to text to tell him I'm okay. When I get in the car to head home, I grab my phone to text Jim that I'm on my way home, like I did almost every day for 17 years.  And I stare at my phone...what was I thinking?

In the first two years of our marriage, I was traveling 70-90% of the time. A few years later he was gone 2-3 nights a week for work.  It got much better when he decided to work for Slalom and he hoped to wind down his career over the following five years or so. But no matter who was away or for how long, or how far, we would check in with a call or text at least two or three times a day.  Perhaps that's what it is about the phone.  It was always our connection whenever we were physically apart. So at some level I may be hoping that we can connect again. And so I check my phone. And stare, unbelieving, but knowing.

I'd like to say that this has gotten better over time.  Maybe someday.  Until that time....

Second verse, not quite the same as the first, and a lot less worse.

Last year about this time I was coming up on what I called my season of firsts: September ... our wedding anniversary ...October ... my birthday...In November it would be hard to feel thankful when all I wanted to do was be with Jim  ...Christmas … I could not even imagine it...New Year’s...So hard to look ahead with so much left behind ...Finally February 19th would bring the first anniversary of Jim’s death. With the help of time, friends & family, a grief counselor and xanax (in no particular order), I got through it. Of course.  

Our last Christmas, Monterey 2013

As the anniversary of my husband's death neared, Kristina, my grief counselor, and I discussed my fears and my plans for getting through it.  While Jim and I were living through what would be his last month, everything was moving and changing so fast. But in retrospect I could remember and re-live again, and  again, the horrible details of that month. It was like some Kafka-esque slow motion replay of the anguish, suffering and roller coaster ride of the last month  of Jim's life. February 19th came and despite my expectations, of course I survived...What else could I do. Life wants to live. And so, that morning, as I  have every other, I told myself, "if you don't get up now, you never will". And do you know what?  I cannot fully explain it but something magical did happen, after that sad day passed, I did feel lighter! As if a load had lifted off my shoulders. I had lived in such dread of that day, and I survived!

I am still amazed that I have gotten through this past year, and am now in my Season of Seconds.  Our anniversary fell over Labor Day weekend and I knew I was just going to hibernate and be sad. But I also did a lot of meditating and reflecting. Much of my grief work has been focused on mindfulness.  And so, as I approach my birthday and Thanksgiving, it is my intent and my goal to be in the present, to be grateful for the moment I am in now. I have also given myself permission to fully immerse myself in grief, if need be, on days that are specific to Jim - his birthday, our anniversary, and the day of his death. Those are days when being present means being present with my grief, my loss, my loneliness. But days like my birthday, Thanksgiving and Christmas are all intended to be celebrations filled with happy memories, laughter and love. I know it won’t be easy, but with intention and attention, I have a better chance or not just surviving these milestones, but thriving.